I haven't been very inspired or moved to post a blog lately. I've posted little status updates on the Facebook version of this blog - Autism: Rethinking Family "light" as I like to call it in my head. But nothing too brag about. I guess I've been in a rut.
You see, I have been
struggling, lately, with my lack of gainful employment. You know, work.
Work for money, anyway. It’s what men do, so I’ve read, worry about
money. Trying to get back into anything, even the lowest entry-level
part-time position, has not gone well. With my "educational level" I am overqualified, of course,
but nowadays who isn’t? And, really, so what? I want to work. I don't mind stocking shelves or emptying boxes. Compared to my regular every day existence, that's nothing. It's work, honest work. And I would love to be doing it.
It would be fantastic to work a job that pays something worth
the time it will take me away from my family
to be there – even if “the worth” is that I feel good about what I’m
doing for less pay than one should be getting. Heck, that was what
part-time teaching was at the college I was at – only being paid for the
hours of actual class time and nothing for the hours prepping the
classes or correcting the exams and projects I had to give and the after hours assistance I gave to my students. I did it because it was a
value exchange I could live with. Still, right now, any job, really, would be a good thing. Part-time would be perfect.
The irony of the whole situation? I have never worked harder than I
have the last seven and a half years being the primary caregiver to our
two autism spectrum children. You can’t measure it in hours or days or
weeks in terms of “time” put in. There is no monetary compensation.
There’s just…I don’t know…there’s just life, and working to make it
better, for a payoff, and not a paycheck.
Last night Elena was very
insistent on following me around our place, getting in my way,
literally, as I was starting to brood again. I finally had to give in
and acknowledge that she wanted my attention. When I did, she took me
into her room, climbed on the top bunk, and
proceeded to sing to me an entire songbook of children’s songs,
including Head, Shoulders, Knees and Toes, Incy Wincy Spider and Skp to
my Loo, in her very dramatic style, and very sweet voice. And as I
watched her, from a foot away, looking into her eyes as she performed
for me, I thought about all those long days with no speech, no talking,
no beautiful sounds and songs coming from her beautiful little face,
just a vague indifference to the world, and how much I have put into
helping her move forward and progress, and I realized that I was getting
“paid” right then and there, and it was only for me to see and love and
cherish. You can’t take it to the bank, but it was certainly a moment
in my life I will gladly withdraw from whenever I need to remind myself
it’s not about a paycheck, it’s about the payoff. And that was, maybe,
the best payoff for hard work I have ever had in my life.
Her timing was impeccable.
I'm still stressed out about money, but I know the work I've been doing the last seven and a half years has been far more valuable than all the paychecks I should have been getting working a "typical" job all that time. As our dear friend Lynne wrote to me, "Don't forget at the end of their lives people regret not having spent
more time with their family, working too much, never seeing their
kids...the most important people."
She is very right. They are the most important people. I will never regret this time of my life, ever.
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